Today is 3/21 also known as world Down Syndrome day! Down Syndrome is the result of a 3rd copy of the 21st chromosome, thus 3-21. Down Syndrome is a part of our family as we journey through life with our little Eli. It's not a journey I was expecting and it has its challenges but it is an enriching journey. It sometimes takes longer to get where we're going, it some times involves unexpected detours but I wouldn't trade this journey for anything. Eli brings much joy to our lives and those around us and we are excited to watch him grow into the boy he is becoming.
This year we’re back in BC Children’s Hospital as Eli was recently diagnosed with Leukaemia (DS B-cell ALL) which has a really good outlook but is going to be a 2 year journey. In this case DS was in a way a gift as it was due to his regular health checks and bloodwork they caught this early. We love our boy and we have faith to make it through this season.
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