Stilling fighting on...

Overdue update...

Its been nearly a couple months since the last update. Life has been crazy busy. While Eli continued through rounds of chemo we had our ups and downs. The latter two doses of this round of chemo had delays due to low counts and it took some extra time to recover which stretched things out. The delays in treatment and a couple other factors, resulted in a visit home in October not being possible. Due to commitments here at home K & I were unable to travel down until the end October. We finally got down the last week of October and were able to have some family time together.

Treatment-wise, Eli is on another 4 week round of immunotherapy until Nov 25. This round is much easier on the body but does require him to connected to a pump 24 hours a day. He's got a backpack for is so he is mobile but its one more thing to always be aware of.

The good thing is after this round is finished on the 25th they will be coming home a week! This will only be the second time home since March. Hoping for some good family time and some rest. At this point, Eli will almost certainly be in hospital for much of December so Christmas will look very different for us this year. 

We're now over 8 months into this journey and honestly we're all tired. People often ask what they can do to help and honestly its hard to answer. We've been supported by so many but the journey gets pretty lonely at times when you are unable to interact with other people. Being apart as a family takes it toll on everyone. Its hard on all of us in different ways as we go through this and we look forward to all being together again. There will be some recovery needed for all of us when we get through this. Don't know what that will look like but we know we'll need it in due time...